9 February 2010

T+147 or 21 weeks

Today was Jeremy's first sports day! He had a very active day - he started by running up the hill, then walked BaBa all the way to the station and back to school, played at recess and lunchtime, and participated in sport. He also managed to do lots of "work" in class, and after school he raced back home for an iceblock. It's amazing he can do so much in this hot and humid weather!

8 February 2010

T+146

The doctor rang this morning with good news about Jeremy's bone marrow aspirate last Monday - the results are again "MRD Negative", meaning that there are no detectable leukaemia cells in his bone marrow! We are so thankful to God!

7 February 2010

T+145

Praise God for another day of "firsts"!

Sunday School started this morning, and Jeremy was happy to say "goodbye" to us and sit attentively in class. It is his first time attending Sunday School since his transplant, and he had missed many weeks prior to that because he was in hospital.

After church, we were thankful that we could go to housegroup again as a family of 4 - another first since transplant!

And tonight, Jeremy and Stephanie squealed with excitement when we suggested that they have a bubble bath - this was actually Jeremy's first bubble bath since he had his central line inserted in February last year.

6 February 2010

T+144

The first week of school is over, and although Jeremy did not manage to attend everyday, he still had plenty of craft and worksheets to put up on our walls! Although it has only been 8 days since he has come home from hospital, it feels like a lot longer than that.

We seem to get exhausted (mentally and physically) each time that Jeremy gets stuck at hospital for an unexpected stay, and it takes us time to get back into a "normal routine". However, looking back we are thankful for God's timing and blessings - for example, now we don't have to worry about a central line when Jeremy is at school!

5 February 2010

T+143

We are thankful that Jeremy is so full of energy each day. Originally we had thought we would only send him to school part time - either half days or a few days a week - and the teacher knows to telephone us if he is tired so we can take him home. However, he bounces to school every morning and is still bouncing when we pick him up in the afternoon. Then he comes home and plays with Stephanie, and (if it is early enough) races down the hill to meet BaBa on his way home.

We have also noticed that he is chatting and singing more since he started kindy - his speech and vocab have improved, and he is keen to teach us the new songs that he learns in class. He is relishing his freedom after having been confined in a hospital room for months and then isolated at home! Praise God that he is enjoying school so much!

4 February 2010

T+142

Jeremy had another happy day at school.

This morning the teachers announced that there would now be 6 kindy classes, instead of 5, as there are so many children in kindy this year. Some children were moved to the additional class, but Jeremy is staying in the same class with the same teacher.

3 February 2010

T+141

This morning at school, Jeremy enjoyed a visit from the fire department before he had to go to hospital clinic for a checkup. Jeremy was pleased that his kindy class was allowed to climb inside the fire engine and touch the fire tools, whereas Stephanie's class could only touch the tools (but she also had a visit from the police department!).

Today's checkup was a quick one with not much waiting around. The doctor told us that the initial results of Monday's bone marrow aspirate down the microscope showed healthy bone marrow - the proper MRD results will hopefully be available by next week.