Sunday, November 28, 2010

28 November 2010

Jeremy was busy at Sunday School today!

Saturday, November 27, 2010

27 November 2010

Thanks to Camp Quality, we were fortunate to be invited to the Johnson & Johnson Christmas Party at Rosehill Gardens.  Stephanie and Jeremy had a ball having their faces painted and hair sprayed, and going on lots of fun rides!  Jeremy's favourite rides were the Freefall ride, the Gravitron and the dodgem cars.

Wednesday, November 17, 2010

17 November 2010


This morning Jeremy went to the Australian Hearing Services for his follow-up appointment. The audiologist was able to re-fit his hearing aids properly, so that they are no longer whistling all the time. Jeremy was pleased when she gave him a little blue backpack with a soft toy caterpillar (who has hearing aids too!).

Then he made it back to school in time to receive this award at the Infants Assembly!

Tuesday, November 16, 2010

16 November 2010

T+427 or 61 weeks

Yesterday at school, Jeremy was knocked over by a big boy in the playground and now he is missing lots of skin from his elbow! His little Kindy friends found Stephanie, and she took him to sickbay and looked after him there.

This morning his wound was full of pus, so he went to see the doctor - who changed his antibiotics to a stronger (pink!) one which covers both his ear infection and any possible infection that may result from his wound.

Thinking back a year ago, we are thankful that he now has platelets!

Friday, November 12, 2010

12 November 2010


Jeremy was happy to spend yesterday and today at home recovering.  He was still feverish yesterday, but thankfully he has had no more fevers today.

Wednesday, November 10, 2010

10 November 2010


Jeremy spiked more fevers last night, this afternoon and tonight. He was happy to play at home, and he wanted to walk up the hill to pick up Stephanie from school, even though he was still febrile.

He is slowly getting used to wearing his hearing aids (which have nothing to do with him having an ear infection), and he managed to wear them all day today. It is good that he told us that he can hear better with them!

Tuesday, November 9, 2010

9 November 2010

T+420 or 60 weeks

Jeremy woke us up in the middle of the night saying that his ear hurt. He didn't have a fever, but was given Panadol anyway for the pain.

This morning he told us that his ear still hurt, so he took some more Panadol and went to school as he was otherwise happy and bouncy.

He was sent to sickbay after lunch, because he said his ear and throat hurt, his eyes were watery, and he generally looked sick. He had a fever of 38.6, so was given more Panadol.

We are thankful that Dr KonKon came over to look at him. He told us that Jeremy has (another) ear infection and started him on antibiotics.

Monday, November 8, 2010

8 November 2010


A year ago today, Jeremy was finally discharged from hospital after his transplant, having been there for 84 days in a row!

Today, Jeremy was pleased to get his new hearing aids.

Wednesday, November 3, 2010

3 November 2010


This morning Jeremy went to hospital clinic to see the bone marrow transplant doctor. He told us the results of the rest of Jeremy's 12-month bloods (which were taken from him when he was having his general anaesthetic in October). His vitamin D is low, so he will need to take some vitamin supplements. His iron levels are very high, but this is in keeping with the huge number of blood transfusions that he has had and should eventually come back down to normal in a few years' time. Apart from these issues, his 12-month blood results were good.

Jeremy will have his next bone marrow aspirate on Wednesday 8 December 2010 - and hopefully the results will be MRD Negative this time.

Afterwards, Jeremy went to see the hospital dentist for his one-year post-transplant checkup, and we are thankful that his teeth are OK.

Tuesday, November 2, 2010

2 November 2010

T+413 or 59 weeks

The Australian Red Cross blood bank is desperately short of blood, so if you can, please visit your local collection centre and give blood! Click here for more information. Thanks!