Tuesday, March 31, 2009
Jeremy's temperature spiked at 38.7 degrees today, and we still do not know what is causing his elevated temperature. Despite all this, Jeremy still seems to be in good spirits, and was happily playing with Play-doh. Later, he escaped the ward, and went for a nice walk to the oncology clinic. On the way back, he visited the the Starlight room where he was given a blue (balloon) sword.
Monday, March 30, 2009
In other news, Jeremy was able to start his next stage of chemotherapy today. The 6 hour drip was administered today, so at least we are on a Monday schedule for the time being. With this set of drugs, the blood counts must exceed a certain thresholds in order for them to continue.
Sunday, March 29, 2009
After having a quiet/rest period in the afternoon, Jeremy came out and wanted to sit with his Baba for a bit. However, he felt quite warm to the touch. The first temperature reading was 37.85 at which point we attemped to take his clothes off. After some protesting and discussion, we did another reading which read 37.60
We called the hospital, who advised that we should come in and be prepared to stay. So we did, and after some more observation (and waiting) at hospital, we were advised that they were going to start 48hrs of Antibiotics.
Friday, March 27, 2009
Thursday, March 26, 2009
Tuesday, March 24, 2009
Recently, Jeremy's hair has been moulting all over his pillow, his clothes and our clothes - hopefully, this means that the chemo is working!
Sunday, March 22, 2009
There was a happy clown who did lots of funny tricks, a juggler that could bounce/juggle up to 7 balls, and lots of dazzling acrobatics. 2 fairies tumbled around the stage in unison, whilst the Zim brothers - 3 acrobatic men - performed many astounding feats of acrobatics. One man stood on top of another, who stood on the 3rd man, and they toppled over and landed safely in a tumble roll. Another man juggled a slightly built lady with his feet, doing somersaults and tumbling over and over. Finally there was a "hula-hoop lady" who managed to do acrobatics whilst hanging from a metal hoop suspended high off the stage.
The kids had a great time at the show and have even managed to write thank you letters/drawings to the sponsors.
In other news... Jeremy is starting to receive a reduced dose of steroids. Hopefully this will mean he becomes less prone to the roid-rage, suffers less attacks of the munchies, and manages to sleep better overnight (and allow the rest of us to sleep through).
Saturday, March 21, 2009
On Thursday (26th) he is booked in for his "day33" bone marrow aspirate - the result will help the doctors determine if Jeremy is High Risk, or Standard Risk. The doctors expect the test result to show zero leukaemic cells in his bone marrow, as this first stage of treatment is designed to induce an immediate remission. As an aside, in the past 2 years, there was only 1 other case where the patient still had leukaemic cells on day 33.
Wednesday, March 18, 2009
We will not know the blood results for a couple of weeks, as the blood needs to be sent off to the Red Cross for tissue typing.
Jeremy's next bone marrow aspirate has now been scheduled for 26 March 2009 instead of 25 March.
Tuesday, March 17, 2009
Unfortunately, the doctor told us that there are still significant numbers of blast cells in his bone marrow. She will continue with his current chemo program, and re-assess his treatment when he has another bone marrow aspirate on 25 March 2009. She told us that some children are initially slow to respond to the chemo, but eventually the chemo does remove all the blast cells in their bone marrow.
However, as a precautionary measure, she wants Ken, Stephanie and me to go to hospital tomorrow and give a sample of our blood, to see whether we could be possible bone marrow donors for Jeremy should he need to go down this track. At the moment he does not require a bone marrow transplant, but the doctor is just getting prepared.
Thank you to all who prayed for Jeremy’s bone marrow aspirate yesterday. We know that God is good and that He will look after us, whatever happens.
Monday, March 16, 2009
Jeremy had a long day at hospital, but was quite patient and didn't complain very much. Mondays seem to be the busiest day at the oncology clinic! He had his bone marrow aspirate under general anaesthetic, but we will not know the results until late tomorrow. He also had a 3-hour blood transfusion, as well as his chemo.
Friday, March 13, 2009
Tuesday, March 10, 2009
Monday, March 9, 2009
Jeremy has been unwilling to use his right arm since his central line was put in. Today the doctor decided that it needed further investigation, and Jeremy was sent to have an X-ray of his right shoulder to see if there was a fracture. However, as this X-ray did not show any fracture, the doctor sent him back to have another X-ray of both shoulders. As this second X-ray was also inconclusive, he was then seen by an orthopaedic doctor who thought that Jeremy might have an infection in his bone. However, Jeremy did not have a fever, which is the first sign of an infection! At 4.30pm, Jeremy was told to come back to hospital tomorrow morning and see another doctor at the orthopaedic clinic.
As it was very late notice, the Leukaemia Foundation was unable to provide transport to the hospital for tomorrow (they were able to drive Jeremy and Eleanor back home afterwards). Thankfully, after a few phone calls, a friend from church kindly offered to drive them to hospital in the morning!
Here is a picture from last night after I shaved it a bit closer. Now I just need a shaver sponsor :-)
Sunday, March 8, 2009
Saturday, March 7, 2009
Jeremy had his first dose of chemotherapy today. It went well, and without any allergic reaction to the chemo drugs.
This afternoon, Jeremy had a general anaesthetic so that a central line could be inserted into his chest. This would allow easy access for taking blood samples and giving medicine intravenously. He was then given steroids through a drip, to kill off the leukaemic cells (blast cells).
To find out more about ALL, go to the Leukaemia Foundation website at http://www.leukaemia.org.au/
Around late January, Jeremy started to appear to have a pale complexion, but had a healthy appetite, and was his usual active self.
However, during the week of 16th February, Jeremy became very tired and was unable to do the things he normally did. He complained about being tired walking up the hill, and was unable to hold onto the shopping trolley for very long.
On the Thursday evening, he had a mild fever, so on Friday he went to have his blood tested. The doctor called with the results, and instructed us to take Jeremy to the hospital immediately.