Saturday, October 17, 2009

16 October 2009


Praise God! For today we had a wonderful surprise when the doctors told us that Jeremy could go home for a few hours on a Gate Pass. However, it was a bit touch-and-go before Gate Pass time, because Jeremy's temperatures were hovering just under 38 degrees! But God answered our prayers and kept him from spiking a fever - and it was such a joy to be able to eat dinner together as a family, and to watch him and Stephanie playing so happily!

Over the past couple of days, some of Jeremy's medications have changed from being IV (in the drip) to oral (down his nasogastric tube). Today, the nurses were very kind to arrange to have the concentration of his Cyclosporin (anti-rejection drug) altered so that it could be given over 18 hours instead of 24 hours. Thus, he was allowed to be unhooked for a glorious 6 hours and come home on a Gate Pass. Jeremy was so thrilled to be drip-free and out of his isolation room - he has been stuck in a room for the last 32 days!

Provided Jeremy stays fever free, he should be able to come home for a few hours each day over the weekend. update:Sat AM - Fever at 6.30am! No coming out today!

Please be aware that his immune system is still very weak - he was required to wear a face mask upon leaving his room. He is not allowed to play in the ward, nor mingle with others. When it gets stronger, he will need to have the childhood vaccinations all over again as those vaccinations have been deleted from his system (rm -rf).

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