Today, Jeremy had another procedure - the removal of his nasogastric tube! The dietician was happy enough with his weight and eating (we have to remind him to drink more!), so they said they would be happy for his nasogastric tube to come out.
This stay at hospital has been confronting at times - it has reminded us of how frail our little boy can be, and how vulnerable he is to infection. However, we were also thankful for how he has progressed. When we were in Intensive Care, we saw other children who were not conscious, and required ventilators. We are also thankful for the 2 marvellous side benefits - the removal of his central line (albeit by emergency surgery), and the removal of his nasogastric tube. When Jeremy starts school, we will not have either of these things to worry about, and he will pretty much look just like the next little boy.
We are looking forward to when we can take our little boy out of the house again.