11 November 2009

T+57

Today's appointment was 8:30am at Westmead, which meant a very early start to the day for the whole family. Thankfully, Jeremy did not have to do much waiting, and the news was pretty good. The doctor was pleased with Jeremy's blood counts and electrolyte levels, to the point where he decided that we don't need to go back to hospital clinic this Friday. They even managed to get back by 11am.

Next week, he said that we can drop down to 2 visits, and that future visits might only be once or twice a week (not Mondays, Wednesdays and Fridays as previously advised!). Thank God for this, as we are still exhausted from Jeremy's hospital stay!

Jeremy's next visit to hospital clinic will be on Monday 16 November for his first post-transplant bone marrow aspirate. We are earnestly praying that the results of this bone marrow aspirate will be completely clear of leukaemia cells. This will be our constant prayer over the next few months and years (indeed for the rest of his life) - that the leukaemia will not come back (ie. relapse).

Jeremy is still not eating or drinking much (although he is trying to do so), and gets tired very easily. He becomes frustrated when he is unable to wander around the house because we have hooked him up to his Kangaroo Pump for feeds or fluids. In order to provide enough sustenance to maintain his weight, his nasogastric feeds need to go in over 16 hours (mostly overnight), but when he wakes up in the morning he wants to be free!