An immensely disappointing day!
The doctors told us this morning that Jeremy could be discharged today! They are happy for him to be at home (in isolation for up to 6 months because of his immature immune system), and to go to hospital clinic on Mondays, Wednesdays and Fridays. This morning he had a farewell play with his dinosaurs, and we packed up all our belongings.
A few weeks ago, we were quite surprised and shocked when the doctors started talking about discharge, because we had expected to be in hospital for months (and thought we were being optimistic if Jeremy could be home for Christmas!). But it seems that he has done very well in hospital - and as his blood electrolyte issues and nasogastric feed problems have been pretty much resolved, he can be an outpatient again! To God be all the praise and glory for bringing our little boy safely through his bone marrow transplant, and for His mighty healing hand!
We had just collected our big paper bag of discharge medicines, and were about to start taking our things to the car when ...
JEREMY SPIKED A FEVER!!!!!!!!
He felt very warm while we were getting him ready to leave, so we took his temperature and it was 38.3 degrees! To say that we were all very upset is an understatement!
Nurses and doctors were summoned, blood cultures were taken, and antibiotics were started.
However, we are thankful that it happened before he was discharged - otherwise, we would have had to come back to hospital and go through Emergency to be re-admitted. We later found out that Jeremy would probably also have lost his room in Camperdown Ward, and would have been sent to another ward - for this we are also thankful! And we know that everything happens in God's perfect timing, and that He is in control of this situation.